OUR BLOG
Road to Hope is one of PCAU’s programs under advocacy and awareness creation established in 2012 in partnership with the Center for Hospice Care in Indiana USA. The program is aimed at supporting child caregivers to start or continue with education and psychosocial support. The children are identified in collaboration with palliative care practitioners especially in the rural districts of Uganda.
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The Palliative Care Association of Uganda (PCAU) is working with the Bible Society of Uganda (BSU) to reach families of Palliative Care patients for spiritual care and support. The visiting team offers bibles to the family and food items. The families visited are selected by the providers and the campaign started in Mbarara district, some areas of Kampala district and Wakiso district. The team that visits the families includes a spiritual leader and the palliative care providers.
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This was done as part of the commemorations for the World Hospice and Palliative Care Day 2020 a unified day of action to celebrate and support hospice and palliative care around the world. The WHPCD always brings together all members and other stakeholders to raise their voices for the cause of ensuring access to Palliative Care for all in need in Uganda.
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On Friday, June 26th, 2020, PCAU held its Annual General Meeting for the first time as a virtual meeting. Following restrictions on movement and social-distancing measures in place due to the COVID-19 pandemic, PCAU streamed the meeting live from the secretariat with members joining in remotely via Zoom.
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As the world continues to unravel under the impact of COVID-19, the children supported by PCAU under our Road to Hope Program are affected by the closure of schools and shrinking resources due to vulnerability. The children on PCAU's Road to Hope Program are child caregivers of palliative care patients from the most vulnerable families.
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Hospices and organizations offering palliative care services in Uganda submitted a written statement to the Chairperson to the Coronavirus National Taskforce, Rt. Hon Dr. Ruhakana Rugunda, the Prime Minister of Uganda. The statement makes recommendations on ensuring essential health services and psychosocial support for the vulnerable, who included people with palliative care needs and their families during the COVID-19 pandemic.
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As the COVID-19 pandemic progressed, health systems around the world were straining under the extra burden. In Uganda, PCAU partners and member organizations improvised different ways to assess patients and to make sure that they get the care they needed, while avoiding unnecessary and potentially risky travel for staff. Although Uganda has not been as hard hit by the disease as other countries around the world, the Ugandan government took measures to stop the spread of disease.
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Despite the disruptions brought about by the coronavirus restrictions on transport, the Palliative Care Association of Uganda (PCAU) found ways to ensure that it continued to support hospices and palliative care centers to offer the much-needed services to cancer patients.
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The Palliative Care Association of Uganda has been hosting weekly online Zoom discussions with the palliative care fraternity in Uganda, with a specific focus on palliative care in the COVID-19 response. The discussions brought together different kinds of people within the palliative care fraternity including member organizations, partners, policymakers, leaders, palliative care practitioners, and other stakeholders across the country.
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